Tag Archives | TC Treatment

Cancer treatment stories and thoughts

Pathology results

I got a telephone call from my urologist this afternoon with the pathology report on the testicle removed during my orchiectomy. I will get a copy of the actual report later but basically the doctor said it was –

Seminoma only
No spread to the sperm tubes or other areas
Did have vascular invasion

So it could have been worse. This is in addition to my negative CT scan and negative blood markers.

I’m being referred to another doctor to discuss options for further treatment. The protocol in Northern Ireland seems to be give everyone preventative radiotherapy. I’ll discuss the option of surveillance with him.

So all things considered, happy days.

Ouch!

I got out of the hospital today after surgery, for what looked like testicular cancer, and as a result have a (very sore) scar on my abdomen and 1 less testicle 🙁

On the upside my CT scan result was negative for lymph node enlargement and there were no tumour markers in my blood. The surgeon told me that I need to get the path lab report to be sure but he cut the removed testicle open in the theatre and it looked like a seminoma to him. Seminoma is a cancer of the germ cells in the testicle. It is very treatable. See the Testicular Cancer Resource Centre or the http://www.cancerresearchuk.org/about-cancer/testicular-cancer page for more details.

So, assuming it is a seminoma, he will be referring me to an another doctor for further treatment options. I’ll probably get some radio treatment to the lower back lymph nodes as a precaution just in case any of the cancerous cells have spread to the lymph nodes but haven’t had time to manifest yet.

I’ll also arrange some sort of surveillance schedule for the next few years. All in all a better outcome than some other possibilities.

Getting a CT scan

I had to get a CT scan of my chest, abdomen and pelvis. A CT scan is an x-ray technique that takes pictures of your body in slices. CT is an acronym for Computed Tomography. It is also called a CAT (Computed Axial Tomography ) scan. The reason it is done is so that doctors can see if there are any anomalies (like tumours etc.) in your internal organs or body cavity.

What happens during the scan?

I was told not to eat or drink anything for the 4 hours prior to my appointment time. As my appointment was for 09:30 this meant no breakfast! I arrived at the x-ray department about 09:20 and was given a jug of liquid to drink. There was about a litre of this liquid which was flavoured with black-currant juice. This drink is an x-ray contrast solution that makes your stomach and small intestine stand out better in the CT scan pictures. I hate black-currant 🙂 Also I was told not to drink this quickly but rather to spend about 5 minutes sipping each cup full. Yuck!! It took about 30 minutes to drink it all. This reminds me of an important point. You have to wait about an hour for this liquid to make it’s way into the small intestine. As everyone knows the magazines in waiting rooms are crap. So take a book with you if you are going to get this done. I took “The Universe Next Door” by Marcus Chown. Excellent stuff. I’ve been told by others who have gone through this that the drink can really open the sluice gates and staying near a toilet is recommended. That hasn’t happened to me yet. I’m writing this about 12 hours after the scan.

At 10:35 I was called for the scan. I had to strip to my boxers and socks and put on one of those weird hospital gowns. The CT scanner itself is like a big doughnut with a bed through the middle. I had to lie on the table of the CT scanner table with my head in a hard pillow that has a cut out section for the head. One of the medical staff tried to put a line into my left arm. She was unable to get a good vein for the needle. She did try. Boy that was sore 🙁 She went for plan B and put it into my right arm instead. The line in is used to inject “dye” into the blood system during the scan. This is to make the blood vessels, and the tissues they flow through, stand out during the scan.

During the scan itself I had to place my arms above my head and tight against my ears. The scanner operators spent about 2 or 3 minutes taking practice pictures to orientate the scanner to my body. During this time the table moved to take me through the scanner. The operators talk to you during the scan, and there is the typical pre-recorded voice with a north American accent that gives instructions like “breathe in and hold your breath”. The doughnut part of the scanner does not move, but you can see the bits that spin inside it through a plastic window. On one of the trips through the scanner I felt a sensation of heat in my chest. It was very pronounced, like having deep heat rub inside your lungs. This was caused by the dye that was pumped in via the line in. A very weird sensation indeed. This lasted about 30 seconds and I moved through the scanner during this time. That was it. The scan was over. The actual scan bit lasts about 5 minutes. During that time about 500 pictures are taken as slices through your body.

All in all an experience of 2 “halves”. A first half with a lot of waiting about drinking that yucky drink then a second half burst of activity as the scan is done. I had read a lot about the CT scan procedure before going so I sort of knew what to expect. I hadn’t read anywhere about the warm sensation caused by the injection of the dye. That was disconcerting but about 5 seconds into the sensation I realised this was what it was and I was not getting cooked by the x-ray machine or having a heart attack 🙂

So if you ever have to go for a CT scan don’t sweat it. It is a painless, reasonably fast procedure. About an hour after the scan, when I was at home, I fell asleep for about 3 hours in my chair. Not sure if this was a result of any of the stuff pumped into me, or the drink or just a reaction to the anxiety associated with getting the scan.

Now I have to wait for the results of the scan and see if it has highlighted anything weird. Fingers crossed it didn’t 🙂

Why you should get to know your nuts

We have posters on bus shelters. We have advertisements on TV. We have leaflets in public places. All encourage men to do monthly checks for abnormal things in the region variously described as “your bollocks” or nuts. Most people think it’ll never happen to them. Right?

Well you could be wrong.

I’d like point the gents reading this to the Testicular Cancer (TC) Resource Center at –

http://tcrc.acor.org/

Or the Cancer Research UK’s Testicular Cancer site at –

http://www.cancerresearchuk.org/about-cancer/testicular-cancer

Do yourselves a favour and read up on the self exam and do it once a month.

I had an appointment with a urologist on Friday to get something that had been bugging me for a few weeks checked out. I suspected that I had TC in one of my testes. As a aside – if anything down there is going to get bigger why couldn’t it be the bit I could use to impress the girls 🙂

Anyway after some tests (ultrasound, blood etc.) it transpires that I will be going in for an operation from which I will emerge 50% deficient in the bollock department :-[ Luckily evolution has given us a redundant system. You only need one. Actually the surgeon asked me if I wanted to get an artificial one fitted during the operation. I declined. Maybe I could get a battery put in to power my Apple iPod 🙂

Become a Cyborg!!

Whilst the doctors can’t say if it is TC until the testicle is out and tested under the microscope, they are pretty confident it is. I also have to get CT scans and possibly radio treatment or chemo depending on the staging of the cancer.

TC has three stages. Stage 1 is when it is confined to the testes. Cure rates for this are 99% (Will probably be 100% when they have data for the last 10 years). Stage 2 is were the tumour cells have spread to the lymph nodes in the lower back near the kidneys. Cure rates for Stage 2 are above 90%. Stage 3 is where the tumour cells have spread beyond the lymph nodes to other organs like lungs, bones or brain. Cure rates for stage 3 are between 50% and 80%. The CT scan and blood tests are used to determine the stage. I suspect that I will be stage 1 or 2.

So I am going to have an interesting time over the next few weeks and months. Working on the principle that “every cloud has a silver” lining I plan to use the experience to study the biochemistry behind this. Should be interesting to study the structure of the molecular markers that the tumour cells release. Should give me an impetus to read the sections on cancer in “Molecular Biology of the Cell” (Albert’s et al) that I bought last year. I plan to put up info re: treatments, thoughts etc. on this site.

So the bottom line is get to know your nuts 🙂 Better yet get your SO to do your monthly check.

If you want a good laugh check out this personal story –

http://tcrc.acor.org/stories/asmith.html